United and committed in improving the quality of care in IBD

ISCC Trustees 2019

Bruno Lucas, Chairperson

Bruno Lucas is Chairperson of the ISCC’s board of trustees. He became a member of the board in 2014 and was subsequently elected chairperson at the beginning of 2015.

Bruno has 22 years’ experience in Information Technology, innovation, management and delivery of services, including significant experience at senior levels within the Financial Services and Telecommunication industries.

As a Director in Great West Life Europe, Canada Life and Irish Life, Bruno was instrumental in designing and implementing technology solutions across Europe and designed strategies to build and maintain cost-effective technology solutions. Bruno joined Eir Business in 2015 and took responsibility of the Managed Services Centre architecture and systems. 

Bruno linked up with the ISCC with a particular focus on helping the organisation to articulate and implement their digital strategy.

Julian Waagensen, Honorary Secretary

Julian is Group Data Protection Officer & Head of Information Security Governance for a Group operating in the healthcare services industry, where he is responsible for the privacy and information security compliance of the Group. Originally from Denmark, he is a law graduate from the University of Copenhagen.

Julian worked in the field of international relations for the UN Office of the High Commissioner for Human Rights in Geneva, before moving to Ireland where he has lived for the last eight years. Julian’s area of expertise is in compliance management and public policy engagement and he has experience with the Irish charity sector, having previously worked for Trócaire for five years.

Adrian O'Brien, Honorary Treasurer

Adrian is a qualified accountant who recently joined the board of the ISCC and has been appointed as our treasurer. Now retired, Adrian worked for many years in a variety of administrative and management roles in the Central Bank of Ireland. In 2013 Adrian joined EIOPA, the European Insurance and Occupational Pensions Authority, as part of their Consumer Protection Unit where he worked on both insurance and pensions projects as well as performing the role of Rapporteur to the Committee on Consumer Protection and Financial Innovation.

Dr Aoibhlinn O'Toole, Consultant Gastroenterologist Specialist Adviser

Aoibhlinn O'Toole graduated from University College Dublin in 2004. She completed her Specialist training in Gastroenterology and General Internal Medicine in St Vincent's University Hospital, Sligo General Hospital and Beaumont Hospital. She was the UCD Newman Scholar in Inflammatory Bowel disease and obtained an MD from UCD for her research on colorectal cancer and immune evasion. She subsequently moved to Boston where she completed Inflammatory Bowel Disease fellowships in the Brigham and Women's Hospital and the Beth Israel Deaconess Medical Center and the Programme for Clinical Effectiveness at the Harvard School of Public Health. She returned to Dublin in 2015 to join the Gastroenterology team in Beaumont Hospital. Her areas of interest include management of complex Inflammatory Bowel Disease as well as colorectal cancer and dysplasia detection.

Angela Mullen, IBD Nurse Specialist Adviser

Angela Mullen grew up in West Cork; she is from Clonakilty and trained as a nurse in the Mercy Hospital, Cork. After graduating, Angela worked in the Mercy Hospital for nine years, gaining experience across all specialties. From 1999 to 2010 Angela worked throughout Australasia, the Middle East and the United Kingdom. Upon her return to Ireland, Angela joined the Mater Misericordiae University Hospital, Dublin, where where she is now a valued member in the GI Unit. She has been the IBD Nurse Specialist since December 2014. Angela completed her BSc in Nurse Management and more recently completed Prescriptive Authority for Medicinal Products in UCD. Angela is currently the treasurer for the IBD Nurses Association of Ireland (IBDNAI) and joined the board of the ISCC in 2017. 

Breda Crowe

Breda is an Area Operations Manager working in Microsoft who recently joined the ISCC board. She was diagnosed with Crohn's disease in 2018 and initially got involved with the ISCC as a patient volunteer. She is a Computer Science graduate, a Chartered Engineer and has over 20 years' experience in management consultancy, Professional Services, and technical and business management. She would like to use her professional experience to positively contribute to the ISCC objectives and support people with IBD, from the viewpoint of someone new to living with and managing Crohn's disease.

Ciarán Davis

Ciarán Davis has been a director of the ISCC since 2007 and served as Honorary Secretary from 2011 to 2019. Ciarán has been involved in delivering many projects for the ISCC and and has been involved in  supervising the operations/support functions. He is especially proud of Living Well with IBD, which is our offering of the Stanford Chronic Disease Self-Management Programme (CDSMP). Through a partnership between the ISCC and Beaumont Hospital which started in 2012, Ciarán trained first as a CDSMP leader and then a master trainer in Stanford University. He was a passionate advocate for the ISCC to roll out the programme to people who are living with IBD. Ciarán is the programme director for Living Well with IBD and worked on the successful roll out of the first courses in 2018 and will oversee the expansion of the programme in 2019. He has been called on to advise self-management coordinators in the HSE as they roll out CDSMP programmes nationally. Ciarán has trained over 150 leaders for Living Well with IBD and other organisations who are licensed to provide Stanford CDSMP programmes such as Beaumont Hospital, the HSE, and several other patient support organisations. Ciarán is a graduate of DCU and works as a business analyst in the utilities sector. 

Amy Kelly

Amy Kelly, from Kildare, is a Freelance Researcher in Television and Media. Amy graduated from GMIT in 2014 with a honours degree in Gnó agus Cumarsáid. During her final year of study, Amy was elected Vice President for Welfare in GMIT Students’ Union. Having served 2 years in this position she was elected President of the Students’ Union in 2016. Upon leaving GMIT, Amy was elected to the national position of Vice President for Campaigns with the Union of Students in Ireland in 2017. From these roles, Amy has run successful local and national campaigns gaining significant experience in research, training delivery, communication, lobbying and event management. Amy also works as an MC, hosting many events around the country. She also has experience in both radio and television holding a number of positions such as radio and television presenter, researcher, production coordinator and production assistant. She was diagnosed with Crohn’s Disease in April 2019. With her recent diagnosis, Amy wanted to contribute her previous experience to ISCC and to help lobby and continue to build on the supports needed for people who are living with IBD.

Eoin Massey

Eoin graduated with a Bachelor of Business and Enterprise Degree and a Bachelor of Business and Entrepreneurship Honours Degree from IADT - Dun Laoghaire. He went on to study accountancy while training with Friel Stafford Corporate Recovery and was accepted as a full member of Certified Public Accountants Ireland in 2014. He was accepted as a full member of the Association of Chartered Certified Accountants in 2015. He moved to PKF O’Connor, Leddy & Holmes Limited in 2017, where he currently holds the role of Advisory and Restructuring Manager. His work experience largely entails day to day management of liquidation appointments, corporate and personal debt restructuring, preparation of business plans for start-ups and companies seeking funding and preparation of business valuation reports.

Fergal Troy

Fergal Troy is a Chartered Surveyor. He got involved in the ISCC as a patient - Ulcerative Colitis. He felt he was in a position to offer support and help to IBD sufferers. He joined the Youth group as he felt it was a more informal way of offering support to young IBD patients through its peer to peer group and informal information meetings. He is lucky to be in a position where in most part he is symptom free. Earlier this year, Fergal was elected as the Youth Group leader for the European Federation of Crohn's and ulcerative Colitis Associations - EFCCA.